@SavingChloeSaxby

SavingChloeSaxby

Tweets by @savechloesaxby

Chloe is a gorgeous 8 year old girl suffering with VWM Disease. Without a cure, she will not make her teenage years. Join us in our quest to find a cure.

Woonona, Australia

551 Tweets 182 Followers 393 Followings 287 Likes

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@savechloesaxby SavingChloeSaxby @savechloesaxby

@7NewsSydney @tayloraiken7 If you would like to help us save our beautiful little Chloe and 200 other children with… https://t.co/I6HxMmvmCv

@savechloesaxby SavingChloeSaxby @savechloesaxby

@7NewsSydney @tayloraiken7 Thank you @tayloraiken7 for this beautiful story.

@savechloesaxby SavingChloeSaxby @savechloesaxby

Special guests @rhythm4rainbows Gala event on 24 June. Lisa & Anthena from Real Housewives of Syd! Tickets >>… https://t.co/XHx8r0hUt8

@savechloesaxby SavingChloeSaxby @savechloesaxby

WIN great prizes - Business Class Fiji holiday, a Maldives overwater bungalow holiday & more!… https://t.co/JPbBgqPGBA

@FindaCureforVWM Find a Cure for VWM @FindaCureforVWM

Family it’s everything! @savechloesaxby = #findacureforvwm visit https://t.co/8rUj78QqN1 #leukodystrophyresearch https://t.co/uPiI97RytN

@savechloesaxby SavingChloeSaxby @savechloesaxby

Chloe's story #WorldRareDiseaseDay you can help at https://t.co/sJvDAz9LSV 🌈🌈 https://t.co/2ihFPKFWkR

@savechloesaxby SavingChloeSaxby @savechloesaxby

@emma_mckeon @DavoMcKeon @mckeonswimming Thanks for always supporting #SavingChloeSaxby #worldRareDiseaseDay… https://t.co/bD3Cw5Z80l

@savechloesaxby SavingChloeSaxby @savechloesaxby

@hamishandandy Thanks for supporting #savingChloeSaxby #WorldRareDiseaseDay https://t.co/N6QLATs4sH 🌈 https://t.co/1yLAJkYKKW

@savechloesaxby SavingChloeSaxby @savechloesaxby

@richardbranson Thanks for getting on board (😉pun intended) with #savingChloeSaxby #WorldRareDiseaseDay… https://t.co/XISaL9iq3C

@savechloesaxby SavingChloeSaxby @savechloesaxby

@therealbeauryan Thanks for supporting #savingChloeSaxby #WorldRareDiseaseDay https://t.co/S8KiNpbdMG 🌈 https://t.co/1yLAJkYKKW

@savechloesaxby SavingChloeSaxby @savechloesaxby

A year at #savingChloeSaxby THANK YOU EVERYONE. #FindACureForVWM #worldRareDiseaseDay donate➡️… https://t.co/8JT65TplBf

@savechloesaxby SavingChloeSaxby @savechloesaxby

It's #WorldRareDiseaseDay! Chloe is 1 in 40 million! Please share & shine light on those who are rare! #VWMDisease… https://t.co/f6VZb6U1Zh

@savechloesaxby SavingChloeSaxby @savechloesaxby

Thank You @NApolloni and @7NewsSydney for your beautiful story on Chloe. We are ever so grateful for your support. https://t.co/71ApFTiT8l

@savechloesaxby SavingChloeSaxby @savechloesaxby

Thanks 7 News for helping us highlight VWM Disease and our desperate race against time to save Chloe. To Help >>>>… https://t.co/kGL2reaqdU

@NApolloni Natassia Apolloni @NApolloni

FAMILY FIGHTS: The race against time to @SaveChloeSaxby and get more funding for research into rare diseases… https://t.co/69Vjjt6auS

@savechloesaxby SavingChloeSaxby @savechloesaxby

WATCH @7NewsSydney TONIGHT!! 7 News will be featuring a story on Chloe in the lead up to World Rare Disease Day!!… https://t.co/wnAXLws9aT

@bartbizthoughts Chris Barton @bartbizthoughts

24 Hours/124km @SaveChloeSaxby Sydney friends join me on April 1st and get involved to help Chloe… https://t.co/F9oGLJkrDY

@savechloesaxby SavingChloeSaxby @savechloesaxby

Hey @pjhelliar did you know 28 Feb is #WorldRareDiseaseDay? OurChloe is 1 in 40 MILLION. We'd love for you to share… https://t.co/FXnu3zHxZL

@savechloesaxby SavingChloeSaxby @savechloesaxby

Hi @BickmoreCarrie, Did you know that 28 Feb is #worldRareDiseaseDay? We'd love you to take a look at what we've do… https://t.co/pWNCDrPHFI

@savechloesaxby SavingChloeSaxby @savechloesaxby

Can you believe this happened? 😡 Phone, keys and most importantly photos from #savingChloeSaxby all gone!😔#nothappy https://t.co/bV0Gcr5SFe

@FindaCureforVWM Find a Cure for VWM @FindaCureforVWM

#findacureforvwm T-Shirts supporting #leukodystrophyresearch #RareDiseaseDay2017 @vwmfamilies https://t.co/0CwvYprvfs

@rarediseaseday Rare Disease Day @rarediseaseday

Be part of the change in February! Change your Facebook cover photo to the attached banner in order to create awar… https://t.co/tT9uxa6Cza

@savechloesaxby SavingChloeSaxby @savechloesaxby

#RainbowForResearch in the Maldives!! Have you seen & shared the rainbow? 🌈 https://t.co/sJvDAzrmKt… https://t.co/o7i3UvnWlX

@savechloesaxby SavingChloeSaxby @savechloesaxby

And so begins the 2017 school year Chloe year 3 and Mads first day of high school! #savingChloeSaxby #squeezyhugs… https://t.co/yIoQoQuXAS

@savechloesaxby SavingChloeSaxby @savechloesaxby

Calling all #savingChloeSaxby friends... Can anyone help out with electronic donations for our next raffle?? 🌈🌈 https://t.co/LxIs9EecgZ

@GongGasGirl Tanya Selak @GongGasGirl

Want to see what love looks like? @SaveChloeSaxby have raised $1/2 million this year through sheer grit and tenacity for their 8yo daughter.

@savechloesaxby SavingChloeSaxby @savechloesaxby

Thanks @OOOceanClub for supporting #SavingChloeSaxby #FindACureForVWM. Highest bidder before Friday 10 Feb 7pm wins… https://t.co/uKtHLCJRwA

@savechloesaxby SavingChloeSaxby @savechloesaxby

Anyone for the Bahamas?🌴See details for an amazing 2 night offer @OOOceanClub! #stunning #paradise #SavingChloeSaxby https://t.co/s0bToCxJjv

@savechloesaxby SavingChloeSaxby @savechloesaxby

Thanks @McDonalds Illawarra stores for raising$5000 to #FindACureForVWM #savingChloeSaxby &kids globally who suffer… https://t.co/gO1TpkwMz1

@FindaCureforVWM Find a Cure for VWM @FindaCureforVWM

@rarediseaseday "with research the possibilities are limitless" @SaveChloeSaxby + research = #findacureforvwm #hope https://t.co/8rUj78QqN1

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